For this initial post, the most appropriate topic to address is to answer the obvious, “Why are you doing this?”
While there are excellent resources for families and advocates through the ARC of Indiana and through Family Voices, providers generally have difficulty interacting with them. I believe that one reason for this is that the relationship between the provider and the consumer is very personal, and discussions about complicated issues tend to “muddy the waters” and make it about business. Another reason is that providers tend to respond to questions as “The Expert,” and wind up lecturing instead of discussing.
It is my sincere wish that this blog will break down those barriers and begin a discussion that includes everyone: People with disabilities, providers, advocates, and those that are a combination of all of the above. We are in the middle of one of the most complex transitions I have ever encountered, and while I am designing programmatic changes, documentation issues, billing, consumer choice, and compliance with regulations, I know that the definition of a meaningful day cannot come from anywhere other than purposeful dialogue with all stakeholders. I also know that this definition will be different for all who define it.
Christiaan
